Nov 02 2009
My mother…
I am so pissed. My mother who is able-bodied, as you know, royally made my want to kick her in the butt. She suggested that I come home in a manual chair and leave my power chair Massachusetts over Christmas vacation. I told that was not acceptable. My mother kind of a slightly Scrooge like person when it comes to money. I don’t like, but overall I tolerate it, because try though I might I can’t alter her.
I don’t know how to explain it, and most able-bodied people don’t get it, but if I don’t have a power chair I can’t move independently at all accept for a few inches. That’s an amazing sacrifice to ask someone to make. Last time I checked I was supposed to enjoy the holiday to not just accommodate other people. If I don’t get to take my chair, I’ll be sore (because whatever would be rented won’t have my seating system), cranky, and miserable. That’s not a recipe for a happy holiday at least for me!
I do own a seating equipped manual chair, but it’s kind of big to fit in a normal car, which my mom brought when our van died. My mother is a sweet person, no doubt and the fact that she loves me is not a question. But, I’m in a wheelchair. I’ve been in one since I was 4. One would think that my parent’s house were I lived for over 22 years full time would have a wheelchair accessible bathroom (not a john where I have get out of my power chair, get into my manual chair, pee, reverse process). I know wheelchair accessible bathroom aren’t cheap especially if you have to install them in an existing bathroom, but my parents manage to pay for a time share!
At the moment, I feel disrespected and annoyed. Maybe I’ll share this blog with her. If I actually tried to talk her in speech, I get flustered and cry. I have always expressed myself better in the written word anyhow.
